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donderdag 13 januari 2011

Dr. Mikovits dismayed about Private Conversation




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>>>> 13 January 2011 <<<<
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From: Jamie Deckoff-Jones

Re: [CO-CURE] med: XMRV+ve Patients & Retroviral Treatment



Dear Jan,

We all wish that this account was accurate, but
unfortunately it is not.

Here is a statement from Dr. Mikovits.

Would you please post?


Thank you,


Jamie Deckoff-Jones MD
Clinical Advsory Board
Whittemore Peterson Institute




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I am dismayed to read about a private conversation,
a portion of which has been taken out of context,
and disseminated on the internet.

My recollection is that the conversation was much
more measured than what is portrayed here.

In fact, the anecdotal response to antiretrovirals has
been mixed, though there have been some notable
successes.

The response to treatment, or lack thereof, is an
important piece of the puzzle.

I am not a clinician. I am a scientist. My enthusiasm
for antiretroviral drugs stems from (unpublished)
laboratory evidence that treatment with
antiretrovirals impacts the disease.

Although scientific convention generally requires not
discussing prepublication findings, the enormity of
the public health disaster ethically requires
suspension of these norms.

The WPI is committed to making any clinically
relevant information available. Our clinical advisory
board was formed to address this issue.

Our vision is to have a research group and clinical
group that interact to produce meaningful treatment
for patients as soon as possible.

We are doing everything in our power to open the
clinic to patients in the very near future. It is a
unique opportunity for true translational medicine,
bench to bedside to bench, and should further our
understanding of XMRV/HMRV infection in the most
direct way possible.

For the last year, I have been forced to respond to
clinical questions, because many patients have had
no one else to ask. We are making progress towards
providing physicians to answer questions about
treatment.



Judy A. Mikovits






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Reference: Co-Cure http://bit.ly/gyC9xN



On Jan 7, 2011, at 6:15 PM, Jan van Roijen wrote:

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> Send an Email for free membership
> ~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~
> >>>>> Help ME Circle <<<<
> >>>> 7 January 2011 <<<<
> Editorship : j.van.roijen@chello.nl
> ~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~:~
>
>
>
>
>
>
> Many thanks to Doctor Speedy from
>
> THE NICEGUIDELINES BLOG
>
> at: http://bit.ly/e8fuRn
>
>
> ~jvr
>
>
>
>
> ``
>
>
> http://on.fb.me/igjcnK
>
>
> XMRV positive patients
> respond to retroviral treatment!!
>
>
>
> by Jan Maverick
>
>
> Fryday 7 January 2011
>
>
>
>
> Xinnian a UK sufferer from Foggy Friends
> has given permission for me to post the
> following:
>
>
>
> *....I also spoke to Dr Mikovits for quite some time
> this evening regarding M.E patients that are
currently
> being treated for X.M.R.V.
>
>
>
> Here's roughly what she had to say:
>
>
> She knows of approx 20 human subjects tested
> positive for X.M.R.V being treated with
> anti-retrovirals and the results are astonishingly
> positive:
>
>
> 4 Patients, some from bedbound state - Now well
> and considering themselves FULLY recovered!
>
>
> 6 Patients 50% recovered - so far!
>
>
> 6-8 Patients 3-4 good days per week - so far!
>
>
> 2 Patients non-responsive (likely down to
> complications with Lymes)
>
>
>
>
> Dr Mikovits added that those recovering will just
> need extra time on the treatment until fully
> recovered.
>
>
>
> This is good news for all of us and it has left me
> trembling to think that one day, perhaps not in
> distant future, that I might be well again....*
>
>
> Amazing results and great news in my opinion, I
> hope you all agree!
>
>
>
> Jan x
>
>
>
>
>
> N.B. Please note than none of these
> patients are being treated by the WPI.
>
>








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